Young mother ready to care for son with rare syndrome: she shares their daily routine

Valérie, a 23-year-old woman, had a very ordinary pregnancy.

It was only during childbirth that the young mother realized from the doctors’ reaction that something was wrong with her baby.

“After giving birth, I lost consciousness. The doctors were more shocked than me. They said the child had no fingers, so I told my husband about it.

Despite this, I did not feel unhappy,” the young woman told StarHit.

Young mother ready to care for son with rare syndrome: she shares their daily routine

The newborn was diagnosed with Apert syndrome, a genetic condition characterized by abnormal development of the skull and hands.

After hearing the diagnosis, Valerie didn’t give up and she and her husband decided to do everything possible to ensure their child could survive and be treated.

“Usually, this syndrome can be revealed during pregnancy.

But, I know many stories where Apert syndrome was not discovered during pregnancy until birth,” Valérie said.

There are several interventions for a one-year-old baby. But, the spouses think they can manage everything.

Young mother ready to care for son with rare syndrome: she shares their daily routine

We have already done surgeries on the head and left fingers. For these operations, the baby’s parents raised funds.

Valérie says that you have to accept your child as he is, then others will accept him too. No need to hide it from the world, you have to let it adapt to society.

Being a mother to a special baby is the hardest job, the main thing is to keep fighting.

The young mother is always supported by her loving and caring husband and loved ones.

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Young mother ready to care for son with rare syndrome: she shares their daily routine
Lately my mom had strange bruises but both she and my wife kept saying they didn’t know where they came from